BlogHer ’10 – Blogging Autism: Shattering Myths, Opening Eyes, and Finding Your Tribe

Here at the personal blogging panel – Blogging Autism: Shattering Myths, Opening Eyes, and Finding Your Tribe with Shannon Des Roches Rosa, Shark-Fu, Stimey, and Carol Greenburg. Sharon deVanport was supposed to speak, but she is in the hospital with bleeding ulcers, and Carol agreed to take her place at the last minute. How blogging […]

2010 ME/CFS Awareness Day

I wanted to post something in-depth about ME/CFS Awareness Day. Something with informative links to CFS research, resources, and charities. Then I thought maybe I could do a video about CFS. But the truth of the matter is, I just don’t have the energy. (I suppose you could check out what I wrote last year […]

Acrostic Poem – Asperger Syndrome

Today is Autism Awareness Day. Asperger Syndrome is on the autism spectrum. TJ has been diagnosed with Asperger’s, and I remain undiagnosed… So I wrote a simple acrostic poem – more a collection of adjectives, really – that describes Asperger Syndrome the way I’ve experienced it, both directly and indirectly: Tags: Asperger Syndrome, poem

Testing Out of Special Education

Tom and I had a meeting with TJ’s preschool teachers this morning. We were supposed to be discussing the results of the speech evaluation and the Functional Behavior Assessment (FBA) they conducted with him after the Christmas break. There had been an informational parents night last week about the transition to kindergarten. I thought it would […]

Raising Kids with Asperger’s Syndrome – Blind Leading the Blind

Last year, we got the diagnosis that confirmed my suspicions concerning TJ’s behavior and mannerisms. Asperger Syndrome. (It doesn’t officially have an apostrophe in there, but so many people use it that I think it’s now accepted colloquially as Asperger’s Syndrome.) He’s on the autism spectrum, albeit the high functioning end. Like any parent of […]

Christmas with TJ – Autism Moms Thursday

This is my first time participating in Autism Moms Thursday, but since this week’s theme is Christmas, I thought it  would be worthwhile to post my videos from Christmas morning with TJ! He wasn’t feeling very good on Christmas. The poor kid threw up when he woke up, but that didn’t ruin Christmas! And, uh, […]

Jumping Through Hoops for the CPSE

Tom and I had a meeting with the Committee for Preschool Education (CPSE) at our school district. Last time we did this, the social worker from TJ’s preschool came with us as his preschool advocate. This time, his teacher and the head of the preschool came with us. Our goal was to gain approval for […]

Questions about a New Asperger Syndrome Diagnosis

I’ve known for a long time that my precious little boy was different than other kids his age. His preschool teachers had us set up an evaluation last December. He had a separate OT/PT evaluation that resulted in recommendations for both occupational and physical therapy. And we made that recommended appointment with his pediatrician for […]

CPSE Occupational and Physical Therapy

TJ had his OT/PT evlauation today, as discussed when we had his first CPSE meeting with the school district back in January. I’d completely dropped the ball on this one. First of all, I thought it was tomorrow afternoon. Second of all, I never got the paperwork, and I forgot to follow up so I […]

Does He REALLY Understand?

TJ had to sit for a timeout twice tonight. And it’s not just that Tom and I are both sick – with a flu variant – these were infractions that would have warranted a timeout on any other night. TJ decided to play in the sink after he used the potty around 5:30. There was […]