Chronic Illness Triage, aka Sometimes Chocolate Cake IS the Best Remedy

Sometimes, we end up getting drawn into conversations online that deserve more than fleeting visibility. A few days ago, I found myself on /r/ChronicPain in a now-deleted thread that started as a rant from another spoonie who was vehemently disgusted with some of her fellow spoonies who aren’t adequately taking care of themselves, in her […]

The Joy of Having a Capsule Endoscopy

Since January 2014, I’ve been through a series of unpleasant procedures meant to determine the cause of my intermittent abdominal pain. My initial assessment had been something to do with my reproductive organs, but it’s revealed itself to be gastrointestinal in origin. The problem is that I still don’t know what the actual cause is, […]

The Opposite of Anger Management?

After a recent Facebook conversation with Robyn Wright about our respective therapy goals, I got to thinking about how I’ve been struggling with something my psychiatrist has been telling me I need to work on for quite some time: expressing my anger. There is a healthy way to express anger, and a lot of people […]

Setting More Realistic Goals For My Health

For the last two years, I’ve been waiting to get back to feeling “normal” again. Granted, my version of “normal” before May 7, 2013 was still at about 50% capacity of healthy folks’ version of “normal,” but it was still a very manageable lifestyle for me. My job was an at-home desk job. (Thankfully, it […]

An Open Letter to My Commenter Who Had a Lot of Anger to Project

I’m not really sure who remembers that I was on Anderson Cooper’s show in March 2013 for a segment about moms who take anxiety medication. There was a clear bias in the way the subject was handled, but I wrote a companion piece to further explore what I talked about on the show, a post […]

A Bubble in Space Just for My Son and Me

I’m hesitant to write about this because of the sensitivity of the subject, but that also feels like a very good reason to do it anyways. One of the most heartbreaking things you can experience as a parent is hearing your child say he wants to die.  The school psychologist called me at home a […]

I’m #ActuallyAutistic – Why We Hijacked the #AutismSpeaks10 Hashtag

Here’s the thing about the “autism advocacy” organization known as Autism Speaks – it doesn’t advocate for people with autism. In fact, if it’s said to advocate for anyone, it would be for overwrought parents of autistic children. In fact, they’ve promoted a video sympathizing with a mother who says – with her autistic daughter […]

Asperger’s and Scripted Language, aka Bless Me When I Sneeze!

Social expectations don’t usually come naturally when you have Asperger’s. But Aspies like me also tend to live in a world guided by rules, both self-imposed and otherwise. One of the first things most children are taught is how to be polite to others, like saying please, thank you, and you’re welcome. You say excuse me […]

Anger is Anxiety is Anger is Depression

You find yourself shaking. Physically shaking. What’s going to happen? What are the consequences? Should you say something? Maybe you should rehearse that conversation in your head a few more times. Prepare for every possible response you can think of. Know how you’re going to handle every possibility. It’s nerve-wracking. You can’t screw this up. […]

The Joys of Having a Small Bowel Follow Through

This morning, I woke up much earlier than usual so that I would be ready when my mom arrived at 7:30 am to drive me to an appointment down at Albany Memorial Hospital. The name of the wonderful procedure I had done is a small bowel follow through to check out my terminal ileum. The quick […]